@ebdent88 Hello Ebdent88, so glad to have found your post. My hubby (54) has recently been diagnosed with Stage 3, Grade 1 ccRcc ~ Yay!!! His tumor is quite large (12cm) so they are first trying to shrink it via the protein inhibitor and immunotherapy route. 2nd treatment was on Thursday and so far his side effects are mainly exacerabated joint pain (he's lucky enough to have been suffering with that already) and occasional short-lived chills, brain fog and some fatigue.

According to Docs his tumor is contained within itself, no margins no spreading elsewhere. He's a big dude and it's a big tumor so Surgeon said straight outta the gate he'd want to remove the entire kidney. Less worry for bleeding afterwards and, heck, he has another one (He was being 'funny' but direct which I can appreciate)

I guess I'm just reaching out to compare notes with folks going through similar experiences with this exact type of Kidney Cancer as I know my hubby would not. He's the guy to literally slap a bandaid on cancer and call it "good to go"

If you or anyone else is reading this post, they have hubby on Ipilimumab 50mg and Nivolumab 40mg. Just had 2nd treatment and I believe they re-test tumor size after 4th treatment and reassess situation. I really really really really don't want him to undergo a kidney removal - yea, I know it's doable but still.

Just wanted to introduce myself, hopefully share stories/notes with others who are in similar situations and/or or taking the above mentioned drugs and your experiences with them.

Hello, my name is Jennifer and I'm addicted to my husband Tom =) Blessings to everyone here and may your journeys be positive ones