Connect
← Return to Is anyone involved in clinical trials for ET, specifically for CALR?
Discussion
Is anyone involved in clinical trials for ET, specifically for CALR?
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (86)Comment receiving replies
Gary, as you've shared, your platelet count is within the normal range.
So, even if the cranberry juice "works" for you, that may not be true for anyone else.
It's brave souls like drbart86, putting their lives on hold to participate in scientifically-based clinical trials, who will help advance understanding of blood cancers.
We'd all love to drink juice and "cure" our ET. I know you sincerely believe you're onto something. But for me, the desire to protect my cardiac system and prevent my bone marrow from progressing into leukemia keeps me taking those green and pink capsules.
Replies to "@garyr443 Gary, as you've shared, your platelet count is within the normal range. So, even if..."
Connect
@janemc My platelet count was in the normal range with the Hydroxyurea, before I started the cranberry juice. I won't know where it is with the cranberry juice until I'm tested again on July 3rd.
I never said this would work for others. It may not. I'm simply sharing what I'm doing. I don't expect anyone to follow my lead on this, but, on the other hand, if it works for me, it may work for others, as well. It will be their decision to try it.
As for cardiac health, that's another thing cranberry juice is noted for.
Hydroxyurea has only one function: to keep platelet count stable. It does nothing to the underlying CALR Exon 9 mutation (in my case) and I doubt it can keep one's bone marrow from progressing to leukemia, either. In fact, I have read, right here on Mayo Clinic Connect, that, despite the Hydroxyurea, people have progressed to leukemia.