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Polymyalgia Rheumatica (PMR) | Last Active: 13 hours ago | Replies (72)Comment receiving replies
Replies to "I wish I had known the time it takes to taper off prednisone and the risks..."
@kathy22wright
Thank you. This was very helpful to me. The rheumy couldn’t decide on a Dx because my ssDNA was high, along with ESR, +ANA; c-rp. and the prednisone started causing awful symptoms. I didn’t taper, I simply quit taking it out of ignorance. My PCR who diagnosed PMR originally, is helping me manage this now. I take either 5 mg of prednisone or 2.5 mg when pain flares up - just one or 2 days. It’s been 1.5 yrs and frequent meditation every day seems to help most. Chronic stress of caring for parents in their 90’s seems to be my trigger, and this group has helped keep me sane. It seems that I took so much prednisone for so long, that my blood sugar is totally out of whack. I can handle the pain & stiffness, but this utter exhaustion is my main concern. I am currently doing the AIP diet to see if it helps. I just started the phase where I add 1 food at a time back. 🤞🏻
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@kathy22wright
What about kevzara?