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Is anyone involved in clinical trials for ET, specifically for CALR?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (86)Comment receiving replies
Hi @drbart86 Thank you for this update and your participation into this Clinical Trial for ET. Cancer research and development depends on these trials…along with the long awaiting cancer patients who would love to find a cure or remission from disease!
So far so good, as ‘they’ say, eh? I can relate to the mainlining of Benadryl! The best sleep I ever had. 😳 But also wired for hours later. LOL.
Sending positive vibes for smooth sailing with the next round. Keep us posted! Hugs.
Replies to "Hi @drbart86 Thank you for this update and your participation into this Clinical Trial for ET...."
@loribmt update week 2 and early week 3.
Week 2 not much more than the increase in fatigue / lack of energy. I guess to be expected due to the huge engery burden that the immune system requires. Would walk in the hospital corridor from one end and back (1/4) and was tired.
This morning had 3rd dose. A big early to really tell, but had to rest on my corridor walk this evening. As well as a much slower pace. But it has been the day after that is the worst. Unless something strange happens remainder treatments in clinic every 3 weeks for up to 5 years.
Hoping fatigue will end at some point. Is a beautiful backpacking loop in the San Juan's (most beautiful part of CO) that I want to do again. But I think Everest is out of the picture 🤣 (not that it ever really was)
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@loribmt didn't get the wired part. I still wondering if somebody got the license of the Mack truck. 😂