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What to think when only free light chain ratio is abnormally high?
Blood Cancers & Disorders | Last Active: Jun 22 10:41am | Replies (27)Comment receiving replies
Hello! I've just come across this thread in my research for more information about light chain myeloma. I was diagnosed with MGUS almost 4 years ago, but it's been watch and wait with just blood work, no bone marrow biopsy yet.
But I continue to have the CRB symptoms out of the CRAB (had anemia but another iron infusion supposedly fixed that again), slightly elevated kappa free light chains, slightly elevated k/l ratio, normal lambda. Most other blood work is normal except slightly elevated calcium, creatinine, always low alkaline phosphatase, and high ferritin.
My general oncologist still refuses to do a bone marrow biopsy or any other testing beside the "watch and wait" blood testing, because my k/l ratio is below 100.
I am unable to travel to see a myeloma specialist, not sure what my next steps should be.
@georgiagurl I am very interested to know your outcome and how things are going for you. I hope you are doing well!
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@siouxbee19 I am currently in a watch and wait situation as you are. I was given a bone marrow test because my light chain ratio was over 100. My ratio then went down and the kappa level has dropped significantly on its own (from 89 to 65; still high but getting lower every month!). My ratio has gone up to 134 again but only because my lambda went down. So, still watch and wait. You should try to travel to see a specialist because a specialist can determine if you need a bone marrow biopsy. It is important to do this; I highly encourage you to seek one out.