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How join support group ?

Chronic Kidney Disease (CKD) | Last Active: 17 hours ago | Replies (20)

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@rick37 @gingerw

You are minutes away from making video calls to Mayo Clinic to get multiple second opinions. It may be worthwhile to talk to a professional as we here are informed about our own experiences and try to pass it on. I would highly recommend that you follow @gingerw as over the years, her concern for helping others in the area of chronic kidney disease is quite valuable. Add to that is @cehunt57 and others. First, for a type 2 diabetic, your A1C is fine as long as you keep it less than 7, and test regularly at about every 3 months, and perhaps see an endocrinologist. Second, you have not said anything about your colorectal surgeon or gastroenterologist as this could be an underlying issue of your current chronic kidney disease. Also, the appliance that you wear may be outdated or not working as well now after 40 years. Dehydration is a leading cause of low eGFR. Third, seeking a dietitian could be quite valuable to you related to diet, exercise and lifestyle. Lastly, understand the different tests for checking the function of your kidneys and keep track of it. Docs look at trends and not one point in time. Understand the differences of creatine eGFR and Cystatin C eGFR, as well as iothalamate and iohexol testing to determine accurate kidney function in both kidneys. In my opinion only, you appear to have underlying issues which are affecting your kidney problems. Solve that first and best of luck to you!

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Replies to "@rick37 @gingerw You are minutes away from making video calls to Mayo Clinic to get multiple..."

@collegeprof Thank you for your comments. I appreciate it.
I do have a Kidney doctor and I see him 3 or 4 times a year. I haven’t really read up on what all of the numbers mean. When I was in the ER a couple of weeks ago my EGFR was 27. The kidney doctor talked with me on the phone and ordered another metabolic panel within ten days of the first tests and the egfr went up to 31. He explained to me that one low test won’t change my kidney classification from 3-4 or 2-3. He said I need a series of tests within a certain amount of time. It removed some of the panic from me.
I have seen a nutritionist for the last 2 years and most of the talk was about low fiber meals to avoid blockages regarding my ileostomy.
I will change the conversation to include as positive a kidney friendly diet given my other medical problems.
I have had different GI doctors since I got ulcerative colitis at 13 years old.
I try to see different doctors as much as my insurance allows me. I intend to be proactive (finally)regarding a kidney diet and lifestyle.
I appreciate any comments or information to guide me.
Thanks,Rick37