Radioembolization Is My Next Step

I had y-90 treatment on both sides of my liver. Mapping was done and couple weeks later one side of liver was treated 30 days later other side was done. Mapping and procedure is similar not fun but tolerable. I unfortunately had a couple rare side effects from the second treatment. Extreme fatigue is the only problem I had from the first treatment. Second treatment i had 1 radioactive bead got loose and caused a radiation ulcer in my stomach on top of the ulcers I already have from functioning pnets (gastrinomas) recovery was rough! However treatment worked very well! I had it done September 2022 and the many tumors I have had some shrinkage or been stable since the treatment. Gastrin levels have been reduced from the 1800s to the 250-300 levels. I would do it again if needed

My husband had a 50% tumor burden in his liver. He had radioembolization done in 2010. It was hugely successful, killing nearly everything and keeping the rest stable for 6 years. He had alot of fatigue and some pain but it was tolerable. Best of luck to you!

@nana120, I love your new profile picture - your Halloween zebra costume is perfect.

In addition to the radioembolization experiences that @lindabees and @kevinmonroemi, you might also be interested in these related discussions:
- Y-90 liver cancer treatment: What's your experience?
https://connect.mayoclinic.org/discussion/y-90-liver-cancer-treatment/
When do you start radioembolization treatments?

I’m just doing the mapping procedure on Dec 5 to determine if my tumor is receptive. This will be the fourth different procedure/medication tried. So far nothing has affected it to slow growth.

Thank you for keeping us posted. We are all on similar journeys, and it helps tremendously to hear how things are going. We are all pulling for you! Keep up your courage, hope and faith!

Good luck stay positive!

@kevinmonroemi
How long did it take for your ulcer to heal? I had the Y-90 in mid-December, and it took me until the end of January to convince a GI doctor I had an ulcer and to do an endoscopy.
I have been treating the ulcer with pantoprazole and sucralfate since the end of January. I have also been on a bland diet but have flare-ups at least once a week. I have a follow-up endoscopy in July.

I think it took about 6 months. I went on feeding tube it was so bad it was the one that bypasses the stomach and went directly in the small intestines. Since I have gastrinomas I was already on sulcrafate however I went from 2 a day to 4 a day I still have ulcers probably always will. They told me radiation ulcers take twice as long as regular ulcers.

@marthawyatt Did you have any ulcers prior to the y90? What kind of tumors do you have? Are they functional? Do you think a bead of y90 got loose?