← Return to Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

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@mngardenaddict

Hi from Minneapolis. I was diagnosed early March 2018 after I had my gallbladder removed. I had two months of FOLFOX here in the Cities and then decided to change my care to Mayo because it had more experience with cholangio than the other options here. I had surgery to remove part of my liver, 10 lymph nodes, my bile duct refashioned, and then underwent four months of gem/cis in Rochester. I have been NED since early November, 2018. The quarterly scans and blood work is done there. We have been looking at one small spot in my left upper lung for the past six months. It's still too small to biopsy so I will continue to wait and twiddle my thumbs as it were. Keep in touch.

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Replies to "Hi from Minneapolis. I was diagnosed early March 2018 after I had my gallbladder removed. I..."

Glad to hear you are doing so well. Twiddle my thumbs that is for sure. Not a nice cancer and so much unknown. Sounds like we had the same surgery. I wish there was another surgical option but there isn’t for me. I hope things continue to go so well for you and yes let’s keep in touch.