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DiscussionCholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
Liver Cancer | Last Active: Oct 2 4:33pm | Replies (219)Comment receiving replies
Replies to "@afrancesca So UHS Transplant is under MD Anderson. The are the local care for me as..."
Jerry, I'm tagging @keggebraaten on this discussion. She may have some recommendations specific to Mayo Clinic Rochester, similar to the resources @afrancesca mentioned that she found at the Phoenix location.
Jerry, When I read my patient notes, I am often confused by the medical language and notations. I have asked what is means, even after I've returned home from a long distant visit. My coordinator has taken my concern to a higher authority to get answer for me. It is worth the peace of mind to hear her tell me what it means, as well as why it was included.
However, if I were in your situation, with prior cancer diagnosis and treatment, I believe I would act more aggressively to get my question asnwered.
Do you have any appointments coming up? Have you messaged your coordinator? Does your local doctor communicate with Mayo transplant?