Mine is stage 4 and I have been living with it quite well for 27 months. Read my post above about my journey. I had a bad spell Jan-March this year that was the result of reaction to chemo as well as other infections, but other than that, I have basically been living with it, receiving treatment and living life. I know it won't last, but I'm doing better than what was initially suggested to me about the progression of this disease. So tell him to hang in there - I hope his progression is as slow as mine! Kris

Hello Kris @krishh

Thanks for your encouraging words!

Teresa

Hi My husband was just diagnosed with stage 4. He just started his first chemo this Monday. we don't know about surgery yet. Were you able to have surgery to remove the tumor?
Mary

Hello Kris
I was diagnosed with cholangiocarsanoma in Feb of 17. I am being treated at CTRC I. San Antonio tx. They have sent me to Mayo clinic in Rochester Minnesota

I am not sure what happened but it posted to soon
I have done everything chemo radiation treatment with chemo infusion 5FU. Then did brachey treatment in the middle of the chemotherapy radiation. I am listed for a transplant But not activated . I am on Xeloda and have side effects. I am meeting with surgeons in. May for staging. Not sure how it works but they will check I found the cancer has spread. Metastasis they call it.
At that point I will find out if I get a chance at transplant. Or I have to go another route. I can offer what help I can give. Prayers and friendship is always there for you.