← Return to Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
DiscussionCholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
Cancer | Last Active: Apr 16 5:58pm | Replies (195)Comment receiving replies
Replies to "Welcome to Connect. We look forward to getting to know more about you. I'd like to..."
My husband as been dealing with bile duct cancer starting in April. A long road, now that the Wipple was aborted, we came home with many more problems. He got a E Coli infection that was very bad on top of surgery. Two rounds of antibotics and finally IV and another 9 days of daily shots to get him over it. Then he started retaining fluid. They pumped out 7 litres of fluid, he lost 15 pounds! He is very weak and doesn't want to eat. Chemo was posponed due to his illness. Getting ready to start again Dec 30. What can I do to help him get strong enough to start chemo again?
I am John, living in Houston. I was diagnosed with Cholangiocarcinoma a year ago. My first indication of a problem was, "I've fallen and I can't get up" lol, just like the TV add. I went to my primary doctor, had a blood test which came back with a biomarker showing too much Calcium. A biopsy and then a PET Scan showed 3 Bile Duct Lesions. Fortunately the cancer had not spread. My Oncologist started me on Chemotherapy Infusions of Gemcitabine and Cisplatin which proved to be hard on my kidneys. I had a port implanted for the infusions. I am now on the Immunotherapy drug Imfinzi which is less toxic than chemo. These treatments have kept the cancer from spreading and the 3 lesions are shrinking. My side effects are the same for both types of treatment. For 3 days I don't want to eat or drink plain water. I'm tired, sleepy, have brain "fog", confusion, forgetfulness and muscular weakness, restless sleep and rest when needed. Lights and sounds are bothersome. I hope this helps and feel free to contact me on this forum.
I had 4 rounds of chemo. It is stage 4 and nonsurgical. So I do my chemo hipeing it will shrink it enough to live the 5 years they say I can. I am 52 year old female. I became ill lat October. Since then I have been to 11 ER visits, several hospital stays and my gallbladder out. Blood work always came back good. The last ER visit I went to I was jaundice and that's how they found my cancer. I have been dealing with diagnosis since May 2019. Thanks in advance for your time