I had 4 rounds of chemo. It is stage 4 and nonsurgical. So I do my chemo hipeing it will shrink it enough to live the 5 years they say I can. I am 52 year old female. I became ill lat October. Since then I have been to 11 ER visits, several hospital stays and my gallbladder out. Blood work always came back good. The last ER visit I went to I was jaundice and that's how they found my cancer. I have been dealing with diagnosis since May 2019. Thanks in advance for your time

My husband as been dealing with bile duct cancer starting in April. A long road, now that the Wipple was aborted, we came home with many more problems. He got a E Coli infection that was very bad on top of surgery. Two rounds of antibotics and finally IV and another 9 days of daily shots to get him over it. Then he started retaining fluid. They pumped out 7 litres of fluid, he lost 15 pounds! He is very weak and doesn't want to eat. Chemo was posponed due to his illness. Getting ready to start again Dec 30. What can I do to help him get strong enough to start chemo again?

I am John, living in Houston. I was diagnosed with Cholangiocarcinoma a year ago. My first indication of a problem was, "I've fallen and I can't get up" lol, just like the TV add. I went to my primary doctor, had a blood test which came back with a biomarker showing too much Calcium. A biopsy and then a PET Scan showed 3 Bile Duct Lesions. Fortunately the cancer had not spread. My Oncologist started me on Chemotherapy Infusions of Gemcitabine and Cisplatin which proved to be hard on my kidneys. I had a port implanted for the infusions. I am now on the Immunotherapy drug Imfinzi which is less toxic than chemo. These treatments have kept the cancer from spreading and the 3 lesions are shrinking. My side effects are the same for both types of treatment. For 3 days I don't want to eat or drink plain water. I'm tired, sleepy, have brain "fog", confusion, forgetfulness and muscular weakness, restless sleep and rest when needed. Lights and sounds are bothersome. I hope this helps and feel free to contact me on this forum.

Please forgive me in advance for this lengthy response, but I don't know how else to explain.
Seven months ago in early January, I was an extremely healthy 79-year-old female, who walked two miles a day, was very active and felt great. I suddenly developed jaundice, lost my taste and smell, and had darkened urine. Those were my only symptoms. I saw my primary care doctor, who referred me to an endocrinologist. Blood work showed that I had a high level of bilirubin and a CA 19-9 level of 361. I was admitted to St. Dominic's hospital in Jackson, MS, where I had in this order, a sonogram, a CT scan with dye, and an MRI. It was determined that my bile ducts were blocked at their fork to my liver. I then had an endoscopy during which my bile ducts were cleared, and two temporary stents were placed. The scrapings obtained during the endoscopy were inconclusive for cancer, and I was referred to the oncology department at UMMC. A biopsy and further scrapings were obtained during a second endoscopy and were also inconclusive. Another CT with dye and another MRI were performed and a suspicious spot was seen on my liver with a couple of others near where the stents were placed. Another endoscopy with Spy Glass was performed, and two permanent stents were placed and further scrapings obtained, which again were inconclusive. A needle biopsy of the liver spot was scheduled and then cancelled when a sonogram showed no spot on my liver. By the end of April, CA 19-9 levels had decreased, but were still high. A laparoscopy was performed with no definitive findings. Over the next two months, I recovered, got my strength back, started walking, and again felt great. Two weeks ago, I had a thorough MRI of my abdomen area and my spine with no suspicious findings. New CA 19-9 numbers had dropped from the original 361 to 74. The oncologist suspects that I may have cholangiocarcinoma. He has asked me to consider having major surgery to remove parts of my bile ducts and half of my liver. He has explained the surgery and the extensive recovery in detail. I am now an active, 80-year-old, who still drives and is currently blessed to have no pain, so I am very hesitant to have this major surgery. I would like to hear of any alternatives to this surgery. I'm also concerned that surgery would be offered in the absence of any findings of malignant cancer cells. Any advice or insight would be greatly appreciated.

My spouse was diagnosed with ICC - Bile Duct Cancer. He had a liver resection due to a malignant tumor on the left lobe of his liver which was done on 6/24/24. His team of doctors came up with the plan to perform an MRI on his abdomen, chest x-ray and lab work every 3 months. However, the appointments are every 2 months. First one is on 8/31/24, next one scheduled on 10/23/24. Bile Duct Cancer is rare and has a high recurrence rate, that is why the MRI’s, chest x-ray and lab work is scheduled. He recently started taking an oral chemo drug called Capecitabine 500 mg. He takes 4 pills within 30 minutes after breakfast and 4 more pills within 30 minutes after dinner. No bad reactions so far but this is only day 4 for the chemo. Bile Duct Cancer caught early, Stage 1B / Grade 2.

Is anyone else taking this chemo drug where you can share your experience? He will be on chemo for 6 months. Will take chemo twice a day for 2 weeks, then 1 week no chemo, this will be repetitive with 2 weeks on and 1 week off for 6 months.