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Am I doing this right? Preparing for my first appointment at Mayo
Visiting Mayo Clinic | Last Active: Jun 17 7:34pm | Replies (19)Comment receiving replies
@jlharsh thank you for posting the link. While I’m in Los Angeles, my sister is in Jacksonville, not far from Mayo there. While my diagnosis of FMD is recent after my 5/27/26 carotid angiogram, yesterday I had a CTA of chest, pelvis, abdomen received the results that FMD is noted in both renal arteries and rt iliac artery in addition to my left ICA. My neurologist has replied that we will monitor, and I follow up with my Interventional Neuroradiologist in 12 days, so I’ll get his feedback but am thinking to come pay sister a visit in the fall and would like to get the Mayo-Jax FMD specialists to weigh in.
You providing the link is timely, thank you!😊
Replies to "@jlharsh thank you for posting the link. While I’m in Los Angeles, my sister is in..."
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@aldine, I am so glad to see you comment here. I have been searching Connect from the Heart & Blood Support Group and home page to find members discussing Fibromuscular Dysplasia (FMD) in Los Angeles after reading the related discussion you posted. https://connect.mayoclinic.org/discussion/fmd-specialists-in-los-angeles/
I cannot speak highly enough about my Mayo experience, though in Rochester. Having a sister close by sure makes it easier for you to get another look at what is going on.
I am adding a link to Mayo Clinic’s overview about FMD in case you have not seen it. Once you link through the description, diagnosis and treatment pages you will find providers, listing two in Jacksonville specializing in FMD.
- Fibromuscular Dysplasia Overview
https://www.mayoclinic.org/diseases-conditions/fibromuscular-dysplasia/symptoms-causes/syc-20352144
I am interested to hear how you are doing and now your journey continues. It may take a while to get it so making contact sooner than later may be beneficial.
Will you come back and comment as you have updates?