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Profile picture for Debra, Volunteer Mentor @karukgirl

Hello @donnademps, and welcome to Mayo Clinic Connect.

You have been through a rough time, haven't you? I'm so sorry this is all coming at you at once.
There is a large group of Camzyos folks here on Connect, have you had a chance to read their stories?
Here is the link to that:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
And...let me introduce you to a fellow member who is full of wisdom and experience with Camzyos, and also a fellow Canadian, meet @boatsforlife. Click on his name, and it will take you to his posts.
I think you will benefit from his words of wisdom.

As you will see if you expand your search here on Connect, there are a lot of folks on Camzyos. I couldn't take it and had to have open heart surgery.
Although the mere thought of open heart surgery can strike fear in the hypertrophic hearts of many, I assure you it is not as bad as it seems. The thought of it is more terrifying than anything else!
How are you doing after your lung surgery?
Are you healthy otherwise?

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Replies to "Hello @donnademps, and welcome to Mayo Clinic Connect. You have been through a rough time, haven't..."

@karukgirl Thank you so much for your recommendation. "boatsforlife" certainly reassured me. I am grateful to have found Connect from the Mayo Clinic. I joined after having my lobectomy and found the information and support great. I also feel better after joining this HCM group, as I was in a quandry about what treatment I was prescribed.