CRPS - anyone suffering with complex regional pain syndrome

@faithwalker Renee, God in Heaven, I would just hug you to pieces, except I fear I would hurt you! My heart and soul goes out to you. You have done so many great things with your life, Renee. More than most people ever do. And here you are, just suffering. My heart hurts, reading you. Just hurts. What can I even say? Lori Renee

I cannot take offense at a helping hand, Lori Renee1.
I do quite a bit to distract myself from the pain actually and attempt to learn more and more as is possible even with the cognitive blur the pain causes. I have learned to paint, polish rocks, diamond paint, sketch with charcoal, and make soy candles. I even continue to try to write although I’m limited to blogs and brainstorming with future plots and novels. I haven’t finished out published another novel since before my knee operation. I may need to be contented with five. That’s okay.
I haven’t taken Kratom but with my seizures and migraines, that’s a discussion better left between my neurologist and me. I’ll let you know what we decide. I need a list of the entire ingredients, inactive and active before we even discuss it as a treatment option.
And neoplasticism? I don’t know much about the topic but I will investigate it further.
On the subject of closer providers teams? I’ve been attempting to get a closer provider to accept me and my case for over a year. I visited with my husband’s provider last month and due to his upcoming retirement, he declined. All other pain specialists with an hour drive, refuse to prescribe opioids or accept me case due to the opioids I currently take. I’ve been told by two “providers” that CRPS WILL NOT respond to Opioid therapy, (with me, a verifiable example of the opposite sitting in front of them) and the only treatment I could receive would be a SCS (which I already have), Lyrica or another “nerve” medication (anti-epileptic), or NSAID (can’t tolerate due to surgical and medical history).
Upon hearing the previous reasons to not be a recipient for their new protocol treatments, they excuse me from their offices with a polite or forceful no and say goodbye .

@k135 Do you attribute your improvement to anything specific? There are not many happy endings with CRPS. My best to you, Lori Renee

How do you use the CBD? Under the tongue? How much do you use/day and how often do you take it? I have various pains right now and I have the CBD oil but don't really know how to use it.

@jesfactsmon Hi Hank didn't you read my post as to how to stop emails

How do you use the CBD? Under the tongue? How much do you use/day and how often do you take it? I have various pains right now and I have the CBD oil but don't really know how to use it.

@ellens There are a couple different ways to take CBD, and you might need to try them out to see which works best for you.

I have tincture that is 2500mg total per bottle. That makes it pretty strong, so I only use a couple of drops under my tongue, once a day. Hold it there for a few minutes, then swallow. They say that is the fastest integration into your system. It is recommended always start low dose, and go up from there if needed. Also, I have softgels 30 mg each, that I can use. They dissolve in your digestive tract, and are good if you don't like the tincture, or want the convenience of premeasured form.

Also, some people use soft gummies, usually in 30 mg form. To me, it is like having a piece of rubber in your mouth, but that's my experience.
Ginger

@faithwalker007 Renee, More thoughts to help you. Have your tried Scrambler(Calmare) therapy? It can be quite successful with CRPS patients. I tried it with 10 sessions, and it helped pain quite a bit. Then the pain ramped up again after about 3 weeks, and I tried another 10 sessions that did not work. However, I have heard good stories with CRPS patients, and even talked to one while waiting for treatment that said he could not live without it. I doubt if your Neurologist will know a thing about Kratom, as it is not FDA approved, and 5 states do not approve it. I don't know if Wyoming does or not. God, Renee, you have such talent. I read what you have done, and it blows my mind. Anyway, I hope in some way, I am helping you. Love, Lori Renee

@ellens There are a couple different ways to take CBD, and you might need to try them out to see which works best for you.

I have tincture that is 2500mg total per bottle. That makes it pretty strong, so I only use a couple of drops under my tongue, once a day. Hold it there for a few minutes, then swallow. They say that is the fastest integration into your system. It is recommended always start low dose, and go up from there if needed. Also, I have softgels 30 mg each, that I can use. They dissolve in your digestive tract, and are good if you don't like the tincture, or want the convenience of premeasured form.

Also, some people use soft gummies, usually in 30 mg form. To me, it is like having a piece of rubber in your mouth, but that's my experience.
Ginger