Tips about preparing for my second opinion appointment at Mayo

Posted by mlassen1 @mlassen1, Jan 13 2:15pm

I live in Panama (a US citizen , now retired) and have been diagnosed with NETS after many tests and biopsy. I have had 5 shots (monthly) of ochreotide and so far the liver cells (metastatic) have grown very little. I am coming to the Florida Mayo Clinic for a second opinion and see if there are any advances towards a cure. Currenly the shots are hormone blockers and its a treatment (so far working) I recently had a followup scan and wondered if it would be advisable to include it with the other portal (Panama Clinic) reports for the Mayo doctor to view or would they want to take their own. a new scan obviously would cost more and perhaps detain my visit. I'm trying to make flight arrangements and have not been given clear advice on when to schedule my return flight to Panama.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Profile picture for vinnie694 @vinnie694

@doonman The only thing I did before treatments was pray to get through it and for good results!

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@vinnie694 Vinnie God was listening.
Continue good health.

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