@firestorm7
Can I ask where you live?
I ask because I myself have been through that before over the years, especially this last spring where I got so sick over 6 weeks, feeling scared & wondering if any Doctor would figure out what was going on with me. 2 different ER’s couldn’t help me after they tested & scanned & prodded & poked. They sent me home with suggestions if I got worse I should come back & wait another 10 hours?? No thanks! They knew I had Lupus but at this point no one knew I had developed a new more serious autoimmune disease; GCA which affects the vascular system, especially in the head. I was in real danger of stroking out or losing my sight. And those other ER’s that did not have the expertise to recognize this discharged me. Very dangerous! I have lost a little sight in my left eye but am grateful I didn’t lose it all.
My husband finally said enough is enough & drove me the almost hour to bring me into the Mayo ER in Phoenix. They admitted me right away.
I feel so grateful that we are closer to One of the Mayo locations & they admitted me, promising they were going to keep me until they figured out my medical mystery. And they kept that promise. I have been home, still recuperating but treatment is helping & I feel so much better. They continue to monitor & the care I am receiving is amazing.
Sorry this is so long but if you are able to get to one of the hospitals, Mayo is known for giving hope to people who have complex medical issues. And they are committed to keeping patients until they figure it out in a team with specialists all working together.
May not be possible for you but people come from all over the world to get answers & treatment.
I’m sure there are other good doctors out there but finding them is the challenge.
I wish you much luck getting answers for your son.