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Anyone had robotic Sugarbaker parastomal hernia repair Dr Cima?
Im due to have this surgery for for parastomal ( ileostomy) hernia , because of pouching issues but no obstruction or pain,and want to hear from anyone who had it and what I might expect afterwards ? Did it help you? Any info appreciated . Thanks
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HugInterested in more discussions like this? Go to the Ostomy & J-Pouch Support Group.
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Hi @bilbobubble826, and welcome to Connect!
Although I have a small parastomal hernia, I am not a candidate for a repair, as it's not causing me any problems.
Hernias are a hot topic for a lot of ostomates, So I hope someone comes by who has had the procedure to help answer your questions.
Can you tell us something about this procedure? I am not familiar with it.
Hi Susan,
Thanks for responding to my post, Im Interested in hearing about the hot topic issues of hernia and ostomy issues, is that a separate area ? I had to join the ' ostomy and j pouch' section as there was no hernia or more specifically, 'parastomal hernia ' section...
I have a fairly large parastomal hernia and ileostomy and was seen at Mayo in Novembet, its a difficult decision to make because I have no pain or obstruction, but have periods of difficulty with pouching and have to change pouches frequently, when I was seen at Mayo I had alot of parastomal skin problems which have now resolved, Im 66,and wondering if I would really benefit from the surgery or just opening the door to a new set of problems , my hernia formed after laparoscopical revisions, one in May 2016 a d a second one in July 2016 after my ileostomy, ( permanently put in place in July 1996 (after a failed j pouch' in 1989) had retracted and was causing miserable skin problems.
I live near Seattle, you say you are in PNW ?
@susanf8
Thx Susan, is there anywhere to find discussions of these' hot topic '( parastomal hernia)issues with ostomates? I joined the Ostomy and J pouch' page as there was no option to join a parastomal hernia page ? Im trying to hear from anyone who had this surgery with Dr Robert Cima at Mayo Clinic .
@bilbobubble826 there isn't a page on hernias. We have a monthly virtual meeting the first Tuesday of the month, and it often comes up then; that's what I meant when I said "hot topic".
The information for the meetings is here:
https://connect.mayoclinic.org/events/
I haven't heard of Dr Cima before, and I think this thread is the best way to find someone who also has experience, so hopefully someone will come by.
I'm in the Olympia area, and also had a failed j-pouch, but I didn't develop a hernia until after a stoma revision in 2016.
Hi Susan,
Thankyou for your reply, I will try and join the next online meeting you mentioned .