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Side effects of Cyberknife treatment for trigeminal neuralgia

Posted by dixieg @dixieg, Sep 3, 2025

I received Cyberknife radiation treatment for trigeminal neuralgia and it solved my pain, but I experienced severe side effects. The left side of my face is numb, I lost most of my taste, have dry mouth and it's now effecting my left eye. I was wondering if anyone else has experienced this or if anyone knows of treatment that is available for the damaged nerve. This has really affected my quality of life. Thanks.

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wrightq03 | @wrightq03 | 5 days ago
In reply to @dixieg "I am so sorry. I know what you're going through. It really does affect our quality..." + (show)
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I am so sorry. I know what you're going through. It really does affect our quality of life. What I miss most is being able to taste. I was hoping that some medical professional would at least be researching this, but I haven't been able to find anyone. Very discouraging. I am still searching and will update you if I find anyone. May have to extend my search outside of the U.S.

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@dixieg Thank you, I pray they can find solutions for all of us suffering with this.

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