What is breast radiation like and what side effects should I expect?
Hello, first off, I'm grateful for this group and thank you to all who responded and shared their experiences with me a month or so ago as I was preparing for my DCIS lumpectomy. Radiation is my next steps. Can you share with me, what is it like during the radiation and effects? I've been told it would feel like a sunburn, anything else I should know? My radiation oncologist is recommending 5 treatments, in my upper breast areas (where the DCIS was). Thank you for sharing your experience
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@triciaot
Wow! Thank you for taking time to send me a lot of great information and the important questions to ask my Radiation Oncologist. I am
also at MDA, live an hour or so out the Southwest Freeway past Sugar Land. My older sister had a lumpectomy in Okla. several years ago, with radiation afterwards, and it caused skin cancer at the site. She ended up having surgery for the skin cancer. So I am a bit nervous. My tumor is at 3:00 on right breast, almost in the middle of my chest. I am post op 5 weeks, and my Radiologist there thinks the 5 straight days of radiation is safe, and what I should have. I had a Stage 1a very small tumor, but my surgeon took a larger section as she wanted to be sure to have clear margins.
I appreciate all the great notes! Hope you are doing well. Thanks a bunch and hugs! Suzanne
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1 Reaction@tpoipu51 - thank you for sharing your experience. I hope and pray that everything continues to go well.
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3 Reactions@texashummingbird , I will start my treatment next week at Mayo too, for 3 consecutive days. I had a lumpectomy 4 weeks ago, DCIS, 8mm, clear margin. My total does is 21.9 Gy. What is yours?
Hugs and prayers that everything will go well.
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3 ReactionsHello @jules2026,jules2026 ..
it’s nice to hear from you! I was at Mayo back in 2013 for my first breast surgery, atypia, clear margins, the beat surgeon!
This time I had my surgery 5 weeks ago on the other breast, at MD Anderson in Houston. Great experience also. Invasive Ductal Carcinoma, 7mm in size, Stage Ia, ER+, PR+, HER2- and clear margins.
I am not sure what my daily or total dosage will be on my 5 consecutive days of radiation, but will ask that question this evening on the MyChart. I would like to only do 3 days instead of 5 if that would be possible. My Breast Oncologist is suggesting 5 years of Letrozole. If you see Dr. Tina Hieken at Mayo next week, please tell her Suzanne from Texas says hello. Prayers and hugs for you that your treatment goes well.
Thanks for the note, Suzanne
@texashummingbird hope all goes smoothly, hugs and prayers. Dr. Tina Hieken is not my doctor otherwise I would
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3 ReactionsIn reply to @triciaot, I had radiation 5 days for 5 weeks with a total of 3000 (something, I can't remember). I didn't get any burns or irritation, I just got a tan with funky tan lines. When I went for mine they asked me if I burn easily or tan and I tan, so I believe that is why I had no issues. The question about "If I get sunburns or tans" was a telling question, once I had that answer I wasn't as nervous.
-My room was always chilly. If your room is also chilly you can ask for warmed blanket.
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3 Reactions@keldra You brought up a good point - tan or burn. My skin tans incredibly easily. But it has also scarred a bit more than I’d like throughout my life. I think that’s why my suture lines didn’t blend in and soften for a long time.
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3 Reactions@jules2026
Hi Jules2026, prayers and hugs for you with your radiation treatment. I go in tomorrow to MD Anderson for CT Simulation, then 5 days of 5.2 Gy each day, total dose of 26 Gy. Ordered the Mepitel film from the Mayo Store online, should arrive in a few days. Have read some other of our breast cancer sisters they had good results with it. Let me know how it goes next week. Hugs, Suzanne
@triciaot
Good morning, my first CT Simulation was rescheduled for tomorrow, 6/18 due to the flooding in Houston earlier this week. Just found out MDA will be giving me 520 cgy each day for 5 straight days, total dose of 2600 cgy. Still a bit nervous with the radiation, but we will see. Hope you are doing well. Hugs,
Suzanne
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1 Reaction@texashummingbird Yes, I believe they found the slightly lower level was equally as good, with less longterm issues.
I actually had radiation at the Woodlands MDA, nice facility. It was a better location for me, and I stayed at a friend’s house for the week. I’m at Huntsville State Park at the moment! I read about the flooding. Hope it clears soon! Best wishes!
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3 Reactions