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Looking for experiences - total colectomy

Colorectal Cancer | Last Active: Jun 16 1:27pm | Replies (8)

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Profile picture for bethbeep @bethbeep

Hello,
About 3 months ago I had a total colectomy with ileo-anal anastomosis, due to cancer, so I only have my rectum left. My diet has had a major change and my dietician has recommended a low fiber diet to limit diarrhea (which often occurs). I eat mildly spiced chicken, fish, turkey (nothing deep fried) some cooked veggies, carrots, green beans, peas, squash, potatoes. If the food is very liquidy, it will go right through me so I need to eat binder foods with meals like rice, bread, potatoes, pasta. I do take psyllium fiber which seems to help. I'm always looking for new ideas of foods I can tolerate to give me more variety. Also, seems I am always drinking to keep hydrated as not having a colon limits fluid intake from foods.
One problem I'm dealing with is due to my internal hemorrhoids (which have never been a problem before) my bottom is often sore from the frequent bms, (currently about 6-8 times on a good day but right after surgery much more) so I'm in process of trying to find a remedy for that. So far the docs recs haven't helped.
It's a big change for sure. I also have a genetic condition. Best to you!

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Replies to "Hello, About 3 months ago I had a total colectomy with ileo-anal anastomosis, due to cancer,..."

@bethbeep Thank you for your answer. I have also internal hemorrhoids, I am sorry, I know how painful it could be. There are part on my long list of things I have to take in consideration.

And I didn’t get any suggestions for how I could manage them after the surgery.

@bethbeep

I'm right there with you! I had mine in 2024 with just the rectum also. My surgeon told me I would have loose bowels the rest of my life. I'm also diabetic so I'm always thirsty which as you say continually having to stay hydrated. So, all that means is I don't do anything without knowing where every rest area, porta potty, McDonald's, etc are. Traveling has become almost non-existent. If I was to fly, are the toilets going to be vacant? Immodium seems to help some and even the off brand version is an added expense and you can't take too many everyday. My hiney gets really sore sometime, so I sit on a donut type cushion. I also had prostate cancer which also has its issues.