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DiscussionHow do you find balance while caregiving?
Caregivers: Dementia | Last Active: 17 hours ago | Replies (48)Comment receiving replies
Replies to "New to this board. Good advice here and it coordinates with what I’m experiencing. Morning time..."
@monty002 My husband sleeps all day except to go to the bathroom. It is 12:26 in the afternoon here and he is still in bed. I have to say that the mornings are when I can have some "me" time and do things that are fulfilling to me. But by 12 or 1pm I feel that I have to get him up and try to feed him though most times he will say he is not hungry. If I escort him into the kitchen and sit him down in front of the food he will eat it. He is at the point where visual clues are more meaningful than words. Sleeping a lot is common with dementia especially at the state that he is in. Stage 6 on the FAST scale. I think that there is only so much that his brain can process in this stage so he needs to go rest and sleep to build up his brain strength again. We have been on this journey for 2 years now. What has helped me a lot is posting on this site and learning all I can about the various forms of dementia and the caregiving that is part of that journey. Teepa Snow is an expert in dementia caregiving and has many online classes, podcasts and resources. To me knowledge is power. When certain things happen I can recognize them as part of the dementia process. I have also learned how to work with the skills my husband still has rather than trying to get him to things that he no longer is capable of. I hope you keep posting here. There are so many people that are in the same situation and can share their experiences. You are not alone.
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@monty002
According to the Alzheimers Association, folks with dementia can sleep up to 13-15 hours as the disease progresses.