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Complicated NET Surgery Needed

Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (7)

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@frankwc

I don't recall the exact reason why PRRT wasn't recommended for me. There was something about chronically elevated liver enzymes and the possibility of micro lesions in my liver. Doing PRRT might make surgical resection more difficult and maybe even prevent surgery in the future. I was disappointed the medical oncologist (NET specialist) also said surgery was his first recommendation.

I opted for Lanreotide as the 2nd best option because it would still leave the option for surgery available for sometime in the "near" future -- I'm scheduled to see the surgeon again in 6 months. I wasn't ready to contemplate surgery being my first option because of everything that might need to be surgically removed. I might cancel my next appointment with the surgeon. I guess it would be useful if you would expand on the ramifications of removing too much plumbing.

I think age needs to be a factor since I'm 72. I told my doctors that surgery at this stage in my life doesn't seem like a good option to me. I have another surgery that is still pending whenever I'm ready. The surgeon who did the surgery prior to the one that is pending said that I should never have surgery ever again. I think that meant never to have orthopedic surgery but I'm not sure. My immune system is called "deranged" but it is currently medically subdued.

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Replies to "@frankwc I don't recall the exact reason why PRRT wasn't recommended for me. There was something..."

Hello @dadcue

You posted about starting Lanreotide injections. Have you scheduled your first injection yet?