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Struggling with profound sense of sadness: How do you cope?
Caregivers: Dementia | Last Active: Jun 17 11:50am | Replies (16)Comment receiving replies
I started this topic right after the diagnosis was made. I’m slowly coming to terms with it I think. Currently waiting for the infusion center to get back to us about the Infusions. My husband still does a lot of what he always has done, he’s in the early stage. We have an appointment with the Alzheimer’s society to help manage this journey. The biggest issue at the moment for me is going from 0-60, I want to enjoy the good that we currently have and yet there is a black cloud over me that seeps in and I become sad again. Before when they said his memory issues were due to his previous head injuries I felt like ok, that’s that and yet when he got the actual diagnosis of Alzheimer’s everything changed. I’d appreciate any tips that you’ve done to help with the here and now. I know I need to be aware and be proactive but don’t want to do it at the expense of living today, if that makes sense.
Replies to "I started this topic right after the diagnosis was made. I’m slowly coming to terms with..."
@laneywj
Hello:
I noticed a free Grief class advertised on Facebook. It was a two part session and really helped me process what is happening (we have what is called ambiguous grief, because our loved ones are still here).
I also made an appointment with a therapist who specializes in working with caregivers. I am waiting a long time for this popular therapist, so hopefully it will help.
Take care. 🌹
@laneywj
Trust me, you are not alone with your feelings. I try to be optimistic about maybe there will be a new cure on the horizon, and then my husband faces a new challenge. It is hard to ever completely relax as it will probably never be any better than it is today. I try to live in the moment and at the same time prepare for handling more of the day to day tasks so that I will be able to cope in the future.
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@laneywj -we seem to be on a parallel path, you and I. My husband just had approval to start Lequembi, and once the neurology department gets done negotiating with insurance, we should be ready for him to start infusions also. I have no tips…just trying to adjust my sails on a daily basis, and there are so many wonderfully helpful people here. I don’t comment often, as I feel I have little to share that is helpful, but I am very grateful for you all, and to have found Mayo Clinic Connect.