Living with Neuropathy - Welcome to the group

To start, my apolgies for this question because it has probably been answered many times bofore. I would like to try acetyl l carnitine for my night time pins and needles in my feet due to non diabetic peripheral neuropathy ( I take R-ALA 600 mg at present). Any wisdom on this and what is a typical dosage? It is available in 500 mg, 1000 mg. Thanks in advance.

The name of the supplement is Nuturna Maximum Strength NEUROPATHY Support Formula

To start, my apolgies for this question because it has probably been answered many times bofore. I would like to try acetyl l carnitine for my night time pins and needles in my feet due to non diabetic peripheral neuropathy ( I take R-ALA 600 mg at present). Any wisdom on this and what is a typical dosage? It is available in 500 mg, 1000 mg. Thanks in advance.

I'm not sure there is what you can call a typical dosage but I can share I take 500 mg of Acetyl-L-Carnitine along with 100 mcg Vitamin K2 twice daily (morning and evening) along with 600 mg of na-R-ALA morning and evening and the other supplements included in the Protocol 525 - https://theprotocol525.com/wp-content/uploads/2020/09/Instructions_Introduction.pdf.

If there is a supplement that is on top of the "hits" chart of supplements for neuropathy, it is definitely ALA and that too R-ALA. BTW, I hear that in Europe ALA is the standard medical treatment for PN - administered intrevenously. I have tried 7-8 different supplements so far - most of them appear to help for a while and then they lose their effect. I had taken ALA 5 years ago and it was quite helpful in mitigating the pins and needles. Then it stopped being effective. I gave ALA a few year break and now trying out again (600 mg once a day). I have not seen any impact so far. It would also be fair to point out that most references for use of ALA are for diabetic neuropathy which is not my case. It would be nice if there was credible research on supplements for PN. I have seen any.

Does the R-ALA 600 mg you currently take help with the pain at all? I am taking 300 mg gabapentin 2-3 x a day plus 1/2 50 mg tablet of tramadol that mostly handles the pain. I want to try the ALA and possibly the Acetyl L-carnitine but would like to hear how it works for you. I don't have diabetes. I think my neuropathy is caused by post treatment Lyme disease.

Hi there John,
Idiopathic Small fiber neuropathy.... my exact diagnosis on top of Chronic Myofasial Pain Syndrome. Kind of gets you coming and going. Pain release massage therapy works wonders for me. This isn't deep tissue but gentle pressure that slowly pushes the pain out. I also find that self guided meditation gets the mind on the same page, focused on pain release. Medicating in the morning to stay ahead of the pain is best for me. Compounded creams work to reduce the needles in hands and wrists. I just read an article in the WSJ of July 18 which reports on the progress being made using Virtual Reality technology to reduce pain. I would like to find a trial and participate. My ace in the hole is a loving supportive family and learning how to use MM appropriately. Never combine alcohol of any kind with MM. Oh....and my mindfulness mantra....right now this is the way it is and I need to rest my mind, spirit, and body. Then I exit whatever situation I find myself in and do just that for 15 minutes or so. What else are you doing to find joy and wonderful moments in every day? By the way, I do not use opioids or NSAIDs or any conventional medications. I also saw and worked with a nutritionist to make sure I introduce sufficent protein along with my lean and green choices.

Low barometric pressure that appears with storms or weather cells sends me to bed to wait it out. Do you notice increased pain as a result of pressure changes? Please share any other "learnings" that you have encountered.

Thanks....Chris

@LeeAase Hi Lee, 36 hours does sound like a long time. Good to know, thank you. I never had a bad batch. It takes practice to perfect the method. When I made my yogurt in a gallon sized bowl with a lid, I used the warmth of my garage while the sun was still out. After about 8 hours the curdled milk was ready to strain through a cheese cloth. So within a day my yogurt was ready. Luckily, I never had left the milk over night. I was afraid for it to turn into cheese which I do not like at all. As I was growing up, my dad made cheese from scratch using the milk from our goats. I disliked the smell. Thanks again Lee. Do you grow bacteria for bread too? Toni