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← Return to Restorex Users: Any advice?
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On Amazon search for "silicone sleeves". It will come up with "glans protector". That is what you want. Plan on adjusting (cutting) those down as necessary. You typically need about 2" of length.
I had previously used a VED daily as directed following my prostatectomy. Night erections gradually improved and at about 5 months or so after surgery they went away. Months later I realized something was really wrong as trimix stopped working. I finally saw a specialist at 12 months after I realized things were much worse. Anyway , I had no incontinence at all after surgery and assumed the ED would pass...nope, not thrown clear of that train wreck.
Are you in this study as part of post surgery "penile therapy" or as a result of worsening ED?
Replies to "@fritzo On Amazon search for "silicone sleeves". It will come up with "glans protector". That is..."
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@beachflyer OK-that did the trick on finding them. If cutting them down, wonder if you end up with more than one out of each sleeve?
The post surgery recovery process appears to be very much a roller coaster ride...ups and downs. So sorry this happened to you. I've heard of this exact thing happening to others. Hoping your situation improves.
I'm about seven weeks post surgery and I requested a penile therapy specialist referral post surgery just because so many people here said it was important to do.
I've had one appointment with a specialist at Northwestern. He said I would be a perfect candidate for this trial and I figured being in a trial would force me to be compliant with doing the daily Restorex treatments. It seems like a chore, but if I have to fill in a log, maybe I'll do my chores.
I have no clue if it will be helpful or not, but I do have a friend who was Stage 4, has been through focal therapy surgery, radiation, ADT and more and is in full remission. He sees the same specialist and used the Restorex and has gotten great results.
I haven't been through the wringer like him, but hoping it helps. I do believe my nerve sparing was effective for me because I've had some response downstairs even at two weeks....but like you say, what is given can be taken away. Time will tell.
My specialist also said that I would be a good candidate for shockwave therapy. He acknowledged that insurance companies do not cover it. I asked if that is because it is still considered experimental. He said that it is because it is new, but that he has found that it is effective for the right candidates. However, he said there was no rush to do it and that I could still benefit later.
Thanks again for the really good advice!