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Prostate cancer, pathology report after RPR & Lymph nodes removed.
Prostate Cancer | Last Active: 1 day ago | Replies (38)Comment receiving replies
@surftohealth88
Thank you for the information.
I've sent my messages to the care team.
And the request for a Ultrasensitve PSA, and Decipher test. I struggle with the lack of communication.
I will continue to press for the right care.
I hope your husband is doing well and your able to breath alittle easier knowing you have quality care.
I feel like I've been holding my breath since the initial office visit when his GP felt a mass during a DRE.
Wishing you both well.
Melinda
Replies to "@surftohealth88 Thank you for the information. I've sent my messages to the care team. And the..."
@myboo2u
The first thing first - HUGSSS and you are doing great dear Melinda !!! 💗
Your partner has a great support and all the love of this world and I have no doubt that you will find the way to get him the best care and newest treatments IF he ever needs them in the future.
Every case is different and we here have members with bad pathology, positive margins and all other bad stuff and they end up with very long remissions anyways, and also there are cases with favorable and contained PC and fast BCR etc. - one just never knows !
I wish that I can reassure you that "big centers" are "all that" but they are not - you will have to be on top of his care no matter where you go. It is just that big centers have available all that is needed for more complicated cases and if you ask for Prostox and Decipher you will get that but still you will have to ask *sigh. At least that was the case for us. Our center also tended to downplay aggressiveness of my husband's PC BUT I knew better and coordinated his case accordingly. They ordered uPSA every 3 mos but I ordered it every month in a walk in lab on my own and it proved to be very good choice. His first uPSA was more than promising (0.014) but wouldn't you know it - it started rising couple of months later and than started rising rapidly ! One just needs to be vigilant with PC.
You got this dear Melinda ! Just concentrate now on his recovery and take one step at the time. I personally would not spend time asking for second opinion about pathology since he obviously has aggressive features and each of them shows that on it's own (inclooding bladder neck involvement), and besides Decipher will tell it all. I would concentrate on recovery and on finding more vigilant doctor in a center that specializes in urogenital cancers.
Sending best wishes and healing vibes ✨
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@myboo2u My journey started this week one year ago with a PSA of three. I still would be untreated if not for the a DRE. My urine stream had slowed a bit I thought but I just wrote it off to old age.