Reactive Arthritis?

Posted by Bobbie @deidre77, May 8 3:35pm

Do I have "reactive arthritis"?

Following the completion of 6 BCG treatments on March 19, I am having consistent moderate to severe pain in the band around my two hips. I have not had any prior issue of arthritis (save sciatica I experience on rare occasions due to a bad back). In addition, when I complained of increased incontinence following the CBG treatments, my doctor told me this is to be expected and will not last. So far, this has not been the case.

As a matter of fact, I can clearly recall getting off the table for my fourth BCG treatment and having a sharp shooting pain in my right hip which I mentioned to the nurse. She said nothing at the time and I did not mention it to the doctor. However, this has continued and gotten worse.

At any rate, a long while after I did mention that I am having this pain and he said it was probably not attributable to the BCG treatments. He wanted to make sure I did not have any problem with my kidneys so he sent me for a kidney scan. The results were negative.

I am in the process of finding information about reactive arthritis and so far what I see - fills me with anxiety. Although it might improve and lessen or continue on to present as a lasting condition but treatable has created a new concern of course.

Has any member amongst us had reactive arthritis which was diagnosed? If so, what treatment was offered?

I hope all group members ultimately receives encouraging outcomes from whatever treatment they are taking.

I wish to thank you in advance for any response(s) I may receive.

Best wishes,
Bobbie

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Profile picture for notaquita @notaquita

@ella76 Be careful! I too had sane experience and 6 weeks later mine feared so bad I went to a Rheumatologist and was diagnosed with Polymyalgia Rheumatica (PMR) which requires long term prednisone use. Since BCG stimulates immune system and prednisone suppresses immune system, I am now waiting to see what further NIMBC treatment I will have. I hope your PMR doesn't come back. Keep me posted.

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@notaquita I was diagnosed with Reactive Arthritis and had only 1 course of prednisone and have been fine for last 4 months. Yours is a different situation and I have been seeing Rheumatologist for several months.
Good luck to you

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That is fantastic! I hope you continue to have great results as mine has turned out to be a huge dilemma. Peace and good luck to you.

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Profile picture for ella76 @ella76

@deidre77
I did have my biopsey today and Dr said he did not think it was cancer but we will have to wait for pathology report to be sure. In fact I just got home and am checking my emails now.
Glad your pains went away but it's a shame you now have to wait another month for the biopsey to get done but your doctor was right to postpone it. I'm sure everything will be fine. I will let you know when I get my report and I'll be praying for your biopsey to be negative.
Take care.
Ella 76

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@ella76 Just wanted you to know my biopsy results came back as benign urothelium.
Hope you get the same good news when you have your biopsy in July.
I am now 1 yr out with no new tumors or lesions.

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Profile picture for ella76 @ella76

@ella76 Just wanted you to know my biopsy results came back as benign urothelium.
Hope you get the same good news when you have your biopsy in July.
I am now 1 yr out with no new tumors or lesions.

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Hi @ella76

I am pleased to hear you had a good result from your latest biopsy. After one year of treatment, you certainly deserve this.

Whenever we hear such encouraging news, we need to celebrate it.

May you continue to have a good report from here on in.

Be well.

Bobbie

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Profile picture for Bobbie @deidre77

Hi @ella76

I am pleased to hear you had a good result from your latest biopsy. After one year of treatment, you certainly deserve this.

Whenever we hear such encouraging news, we need to celebrate it.

May you continue to have a good report from here on in.

Be well.

Bobbie

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@deidre77 Thank you and I am praying you get good results in July when you have your Biopsey.
Take care and let me know how you make out.

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