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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@jakedduck1

@artist01
@bustrbrwn22
The medical device wouldn’t help me at least not for my Epilepsy. When I have a seizure I have no time to call out. After, when I’m post-ictal I am confused, in fact I don’t know I had a seizure even though my muscles ache and my tongue & cheeks are chewed up. Then I sleep from 8 hrs to 5 days. So by the time I figure out what happened I'm okay.
As far as terrifying is concerned not at all, At least not to me but probably are for people who see me.
Falling off the house, latter's, trees, getting stuck on a fence, that was embarrassing. The fireman rescued me. I'm so grateful for our emergency workers. But they were more terrifying after the fact.
Take care kids,
Jake

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Replies to "@artist01 @bustrbrwn22 The medical device wouldn’t help me at least not for my Epilepsy. When I..."

@jakedduck1 Gosh Jake, not good that's for sure. You don't have a prodome ahead of time to warn you a bit? I feel so badly for you. When I was having so many blackouts, I always knew it was happening and even though everything was going black, I was conditioned to press my Alert before I completely passed out.
For me, the Alert really works.
Where I live, here at the seniors' rez, we all have one. The main alarm is always going off on the main floor to summon the staff to the aid of the stricken person who has just pressed their Alert for help, and all H--- breaks out as 2 or 3 staff run pellmell for the elevators to get to the person. They even know from the Alert device which of our four floors the alarm originated from. I sure wish something like that could work for you, Brave One. X0

@jakedduck1 a roommate would be very helpful in so many ways for you. I hope that happens soon for less worries. The people I knew from New Jersey were pretty tough so watch out(it’s maybe a good thing, lol). You probably lived in new england at one time to appreciate the diversity. I also know of people who have specially trained dogs that can contact emergency services for help. True, they are more work to have around but they do make great companions and alert us to danger. Besides, a dog will never want to relocate as a roommate would.
Jake, I am surprised with all the technology there is not a cellular device(like a watch) that can measure your state of health condition since a seizure occurs because the neurons are misfiring. The device should also be able to contact emergency services for you in the event you cannot. In today’s world a device can handle voice commands as well i.e. if the person can talk. Voice identity by machines is common when I place calls to financial institutions. It is becoming more difficult to talk to a person; however, with emergency services it should not be a problem. I have found by answering “human” to an automated service gets me quicker to a live person.....what a pain it has become to talk to a person in a business. Today even worse with the pandemic. Usually, everything is online now.
I try to take advantage of technology to make life easier for me. When the doorbell rings I can see who it is and also talk to them from my couch. This was my remedy for not being able to go the front door quickly. I didn’t want any problems with package deliveries. Be safe. Toni