Should 80yr old have aggressive treatment for metasisized cancer?

Posted by meem65 @meem65, 5 days ago

At 80, I want my last years to be quality. I'm considering no treatment.

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Profile picture for climateguy @climateguy

If you are prescribed Orgovyx, if you don't want to continue to tolerate whatever side effects it gives you, you can stop. Its a daily pill as opposed to an injection that lasts a much longer time.

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@climateguy I've approved for Orgovyx at no charge but for now I'm not doing it. My Urologist wants me on it but RO does not want me on it. My Urologist is willing to go with what my RO says for now. My Uroligists that I saw today and my RO wants to see what my PSA is in a month and we'll go from there. My RO said if it rises I'm determined to find and zap it too.

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Profile picture for pemarq @pemarq

I am an 83 yo in excellent health with gleason 8. PSMA shows spread to seminal vesticle and pelvic lymph node. It has been recomended that I start 6 weeks of radiation and 2 years of ADT. Like meem65 I am cosidering not to treat.

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@pemarq

I was in the same position and age as you about 15 months ago. I had 44 radiation treatments plus 4 months of Lupron. I had to stop the Lupron because of very painful bone and muscle pain plus headaches that were severe for 9 months after treatment ended. Now at 11 months after treatment myside effects are about 10% of 2 months ago and my PSA < 0.03. I get another PSA in July and hope for the best. Most people do not have the severe side effects as I did. Mine were so severe that I believe continuing Lupron would have killed me. If I had to do it over again, I would want to try a pill type ADT that could be stopped or slowed on a daily basis. A 3-month Lupron shot can be fully effective for up to 9 months and by then you would have had 2 more shots. I feel that Lupron is severely over dosed for me and many people.

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Profile picture for pesquallie @pesquallie

@pemarq

I was in the same position and age as you about 15 months ago. I had 44 radiation treatments plus 4 months of Lupron. I had to stop the Lupron because of very painful bone and muscle pain plus headaches that were severe for 9 months after treatment ended. Now at 11 months after treatment myside effects are about 10% of 2 months ago and my PSA < 0.03. I get another PSA in July and hope for the best. Most people do not have the severe side effects as I did. Mine were so severe that I believe continuing Lupron would have killed me. If I had to do it over again, I would want to try a pill type ADT that could be stopped or slowed on a daily basis. A 3-month Lupron shot can be fully effective for up to 9 months and by then you would have had 2 more shots. I feel that Lupron is severely over dosed for me and many people.

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@pesquallie I need to point out that not everyone who gets Lupron shots has terrible side effects. My husband has been on Lupron forever, initially a shot every three months, and then he changed to a shot every six months when he began getting the shots locally. He has not had terrible side effects that caused him to stop Lupron. I guess I would say don't refuse it until you give it a try.

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