@scottmoon

I’m sorry you received that diagnosis but want to encourage you with my husband’s situation. December 2025 he was given the diagnosis of MSA-Type C, but in May 2026 at UT Southwestern’s MSA Clinic his movement disorder specialist backed off MSA & says it might be Parkinson’s or induced by a previous infection because he has an immune disorder (not autoimmune). It still might be MSA but doctor said time will tell. He is not being treated for PD; levodopa was totally ineffective when he tried it last year. And the doctor said his condition is stable. Neurological diagnoses are hard to pin down because symptoms overlap.

When did your symptoms begin? His started appearing in 2022. How are you doing? My husband is still mobile with a cane & for outside the home he generally uses a rollator. He can walk without a cane but shouldn’t due to the risk of falling.

We’re currently in the process of getting an appointment with Mayo Clinic in Rochester for a second opinion.

I hope you get results when you expect. My husband is having a terrible time with that. He had the same skin biopsy February 11 & still has no results because that same lab says they never received the biopsy; UT says they sent it. So after much aggravation & delay, he finally got another appointment at UT to go through the biopsy again. It has been a terribly disappointing ordeal to get it done again. His appointment is in July, so it’s a long delay. Thus, we’ll continue to seek answers from Mayo.

I wish you the best & prayed for you this morning.