@johnbishop and all... I don't know for sure. The PMR and GCA first raised their nasty heads 2 years ago after the 2nd Covid infection I had that fall, that was extremely severe. I was able to stay home, not hospital, by promising ER doc I'd stay on my Bi-pap and O2 on 3 L 24/7, to keep my O2 above 90, the required level to avoid hospital admission with Covid. I refused to be admitted!!!! It was a tough week on the Bi-pap, alone, so ill... got 3 IV Remvisidere infusions after positive test.

The day after began to feel better, I had enormous hips and shoulder pain. Never had before. Couldn't turn over in bed, barely move. It was scary and rough. It was my 1st PMR and GCA. Put on Prednisone then added Methotrexate for GCA with Prednisone for PMR. Calmed things finally, but never the same after that. My muscles. Mobility worsened. Fatigue worsened! Yuck.

Mayo 2025, ER for coma level glucose, steroid induced diabetes, serious 4 days ER and then several days in step-down care to get under control, begin insulin, level everything else out as well. I was a mess...

In hospital rehab a week and day 3 legs, hips down, were paralyzed. Totally. for 4 days. No diagnosis. Mayo rheumatologist increased my Prednisone to 20mg on the chance it was PMR, although she wasn't sure and they think not now. Think it was caused perhaps by allergic reaction to Oxympic that was keeping diabetes controlled until I suddently had all the side effects and was bedridden, muscles not responding to nerves. Rehab NH from hell, learned to walk again, sort of, and if get over tired, over-do PT or exercise, or anything, can't use my legs. It now affects the whole body. All my muscles go bonkers.

I began have shoulder, neck, scapula pain, both sides!. 2 weeks ago, getting worse daily. Then, hips began the same, and pelvic area lower back. Harder daily to use my legs. Lots of pain. Doc increased Prednisone from 14mg taper hold for last4 months, to 16mg daily 2 days ago. Helping reduce pain some, but not enough. Kept me up all night last night. Today, I'm losing the muscles in my whole body... legs are not moving well, arms can't do much and are jerking from the shoulders, in the upper arms, hands don't want to work. typing is hard. Hands haven't worked well for several days, getting worse.

Sight is very bad now, blurred and foggy. I may be losing my sight with GCA! Actually, as I'm chatting, I'm getting worse. I'll call doc now and see what to do.

Thanks for being you, John. Blessings, Elizabeth