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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 hours ago | Replies (6019)

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@robo37

Hello. My neuropathy began in 2008 after chemotherapy. Since then it has gotten worse which may be due to being diabetic. I am using diabetic footwear, but I believe the thick soles along with neuropathy may be effecting my balance somewhat.

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Replies to "Hello. My neuropathy began in 2008 after chemotherapy. Since then it has gotten worse which may..."

Hi @robo37 , my wife's PN started after her 2nd chemo infusion on 2/26/14. It has gotten slowly but steadily worse over the years. She is not diabetic. Her neuropathy manifests as severely burning feet and ankles. Lately her worst areas are her heels (mostly right one). Her feet get swollen and very red. She says they are angry, and I know that is how they feel to her. She suffers. She uses medical marijuana to help deal with the pain. She says sometimes it feels like she is walking on sponges or pillows or something, that they feel strange, not normal when walking. I do not think it affects her balance too much as yet. Do you do anything for your pain? You've had yours a lot longer, 12 years. I feel badly for you, do you have a good support system (loved ones, friends, family) in your life? Best, Hank

Hello @robo37, Welcome to Connect. I'm sorry to hear your neuropathy has gotten worse. I have been diagnosed as pre-diabetic and also try and walk carefully due to balance issues. I have small fiber peripheral neuropathy and have always liked wearing comfortable shoes so I mostly wear ones like Sketchers with memory foam linings. My Mayo neurologist suggested that I wear a more supportive shoe but I haven't found any that I like that are comfortable. There are a few other discussions you may want to read through and learn what others have shared.

- Chemo-related Neuropathy: https://connect.mayoclinic.org/discussion/1st-time-at-mayo-for-neuropathy/
- If the shoe fits, wear it!: https://connect.mayoclinic.org/discussion/if-the-shoe-fits-wear-it/
- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

Have you tried any exercises to help with your balance?