Hi Colleen - I keep losing my replies but will try once more..
My first infusion went very well. In fact my labs in preparation for the second infusion showed that the second one wasn’t needed. I am improving from the pneumonia impacts in plateaus and restarting exercise on my stationary recumbent bike.
My stamina and outlook is improving enough that we are planning a three weeks vacation to visit our grown children and friends where we used to live in Northern California next month. We flew there last year but will make it a road trip this time.
The results from the ongoing tests in the Car-T trial have shown consistent improvement over the two years with the exception of the pneumonia event. My initiative is back and making plans again is possibly the best medicine.
I would like to read other Car-T experiences as the first line therapy because it used to be applied as post chemo and relapses. Its main issue for me was the extreme fatigue afterwards. While fatigue improved my immune system was lagging thus needing infusions. The pneumonia though threw a wrench in my recovery progression. But I am feeling much better and getting ready to be involved with an enjoyable lifestyle again.