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Tests show Mycobacterium Chimaera

MAC & Bronchiectasis | Last Active: 7 minutes ago | Replies (38)

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@dantur I am sorry you are not finding good assistance where you are located. This support group can help - we are patients living with a similar diagnosis.

The treatment for mycobacteria infections (called MAC or NTM) take many months to eradicate the bacteria as it is hiding deep in the lungs. Do you see a lung specialist? They can add other treatments such as using a nebulizer and breathing techniques to get mucus out of your lungs. This can help make the antibiotic treatment more effective. Also, it is necessary to monitor, using sputum samples, to determine whether the amount of bacteria is decreasing, and then finally gone. If you have cavities, periodic x-rays or lung scans are needed to track your progress.
Here are two European resources that might help you also:
https://europeanlung.org/en/information-hub/lung-conditions/non-tuberculous-mycobacteria-ntm/
And in Italy:
https://www.amantum.org/
Are you able to use a translate function to read our forum?

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Replies to "@dantur I am sorry you are not finding good assistance where you are located. This support..."

@sueinmn grazie per avermi risposto Sono seguita dal reparto infettivi della mia città ma non so se è necessario rivolgermi al centro che mi ha indicato, giusto per avere un parere di un altro professionista in libera professione (es Policlinico di Milano) oppure attendere almeno la prossima tac o broncoscopia (dopo un mese di terapia mi hanno detto sia troppo presto poter vedere risultati). Cosa mi consiglia? Dove vivo non hanno terapie alternative oltre quella antibiotica che sto seguendo.