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Tests show Mycobacterium Chimaera
MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (37)Comment receiving replies
Ho scoperto di avere questa infezione per esclusione. Stavo male già da un paio di anni ma nessun medico aveva pensato fosse una micobatteriosi. Ora sono in terapia con i 3 farmaci da un mese. I miei polmoni sono seriamente danneggiati (cavitati) e temo di non poter guarire. Sono preoccupata per la mia salute. Se qualcuno si trova o si è trovato nelle mie condizioni gradirei sapere se la terapia funziona. Grazie
ENGLISH translation (automated using Google translate)
I discovered I had this infection by exclusion. I'd been sick for a couple of years, but no doctor had ever thought it was mycobacteriosis. I've been on the three drugs for a month now. My lungs are seriously damaged (cavitated), and I fear I won't recover. I'm worried about my health. If anyone is or has been in my situation, I'd love to know if the treatment is working. Thank you.
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@dantur I am sorry you are not finding good assistance where you are located. This support group can help - we are patients living with a similar diagnosis.
The treatment for mycobacteria infections (called MAC or NTM) take many months to eradicate the bacteria as it is hiding deep in the lungs. Do you see a lung specialist? They can add other treatments such as using a nebulizer and breathing techniques to get mucus out of your lungs. This can help make the antibiotic treatment more effective. Also, it is necessary to monitor, using sputum samples, to determine whether the amount of bacteria is decreasing, and then finally gone. If you have cavities, periodic x-rays or lung scans are needed to track your progress.
Here are two European resources that might help you also:
https://europeanlung.org/en/information-hub/lung-conditions/non-tuberculous-mycobacteria-ntm/
And in Italy:
https://www.amantum.org/
Are you able to use a translate function to read our forum?