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Supporting a friend with ALS

Brain & Nervous System | Last Active: 5 hours ago | Replies (10)

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I have just be informed that a dear friend has been diagnosed with ALS I want to be as supportive as I can be. I'm sure the suggestions I glean from this website will be helpful. I want to be as well informed as possible to help her on this journey. Thank you for having this site.

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Replies to "I have just be informed that a dear friend has been diagnosed with ALS I want..."

@patricialeclair I know how you feel. I also recently learned that a dear friend was just diagnosed with ALS. I was so scared to visit with him. I did not want to say anything stupid. I am so glad that I did. We laughed a lot and we cried .

I don't normally sign up for groups but I think this is one that I need.

@patricialeclair I went to visit my friend who has ALS last summer. We had a lovely time recalling our childhood and catching up on how our siblings were doing. Both of our parents and grandparents have passed away and we recalled how we each viewed each other’s parents.

I brought some picture books to show and talk about my life in Arizona and tell her about my family.

My friend was no longer able to move, speak or eat, but she had a tablet that she used to communicate and type with her eye movements. This technology is amazing!

I was concerned that I would ask or say something wrong, so I decided to ask her about her life, especially the years when we were not in touch. We were both born and grew up in Ukraine, but I came to the US as a teenager and she came here when she was in her mid thirties.

I will be in the Midwest once again this summer and hope to spend another weekend visiting her. I don’t know how many more times we will have an opportunity to be together, but I want to show her my love as long as I can.