1. < Neuroendocrine Tumors (NETs)
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I am 75 and have carcinoid tumors NET in lungs

Posted by ggiinnaa @ggiinnaa, Apr 18, 2025

One doctor suggested that I have DIPNECH I do have small carcinoids throughout my lungs. They were discovered when an Adenocarcinoma and my top right lung lobe was removed. I would love to hear from anyone with DIPNECH or carcinoid lung NET

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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haelsky | @haelsky | 3 hours ago
In reply to @lschiavone "@ggiinnaa I have carcinoid tumors I call lesions. I had a resection done 17 years ago...." + (show)
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@ggiinnaa

I have carcinoid tumors I call lesions. I had a resection done 17 years ago. Every year they have to go in and obliterate them. Sometimes I have one or two. My only symptom is I cough up blood. I go to BWH in Boston. I am of Italian decent. I would like to hear how you are doing. I am currently in Mass. I am 69 years old had it now for 17 years.

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I am age 78 and was diagnosed in July of 2025
In 2023 there was an incidental finding on a coronary artery study which
I nor my primary physician gave it the attention required.
I was having a work up by a
GI doctor who reviewed my history. He listen to my lungs and referred me to a pulmonologist who referred me to an interventional pulmonologist who found two tumors in my
RML and RLL . I had FDG scan my health insurance would not approve any other scan. In September 9/25 I had a RML loan and a RLL basilar segmentectomy.
I had first surveillance scan without contrast.
I requested my second surveillance scan have contrast .
All my care in at the
Perlmutter Cancer Center of
NYU - Langone.
My dx is typical
My only symptoms are shortness of breath
and intermittent coughing
Is you surveillance protocol a CT with contrast?
I hope all goes well

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Turkey, Volunteer Mentor | @tomrennie | 1 hour ago
In reply to @lschiavone "@ggiinnaa I have carcinoid tumors I call lesions. I had a resection done 17 years ago...." + (show)
Profile picture for lschiavone @lschiavone

@ggiinnaa

I have carcinoid tumors I call lesions. I had a resection done 17 years ago. Every year they have to go in and obliterate them. Sometimes I have one or two. My only symptom is I cough up blood. I go to BWH in Boston. I am of Italian decent. I would like to hear how you are doing. I am currently in Mass. I am 69 years old had it now for 17 years.

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@lschiavone Hi and welcome to Mayo Connect. Wow, you have been battling the carcinoid lesions for a long time. You have some experience with this. Do you ever get any symptoms? If so, what are they? Thanks.

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