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Camzyos thoughts? Good or bad

Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 hours ago | Replies (20)

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Good morning...started taking 5 mg Camzyos in the mornings in Oct 2025. Felt great the first two weeks except dizzy at times. Doc switched med to bed time. Dizziness gone literally over night. My first echo 30 days after starting showed great improvement in the gradient so med was reduced to 2.5 mg. Other side effects; diarrhea, no appetite (lost ten pounds)...the months of Oct- January were difficult...Trying to get ready for holidays, work schedule, out-of-town family events, etc. and no energy. I slept generally well except for bizarre dreams. I found that for me good sleep didn't relieve the fatigue; I woke up as tired as when I went to bed. However, I found that on days that I was not at work I would have a cup of tea and take a nap from 2-3:30. I felt groggy upon wakening but could continue house chores, errands, do laundry, etc. and it gave me energy for the next day. Good news...as I began the month of February I started to feel somewhat "normal"...I have found that I better get my goals for the day done in early morning by around two because I feel like my "tank" is starting to dwindle. When I am home I fix a full dinner for my family at lunch and then we have sandwiches/salad or soup for dinner...no energy to fix a full dinner. My appetite is still finicky but my digestive system and weight have stabilized. I find it discouraging to anticipate living each day with a dwindling tank but I have learned not to fight that reality. I needed to face it and prioritize my "to do" list to morning and realize the afternoons/evenings are way less productive. I feel like it's half of a life each day compared to my usual work ethic and productivity but I need to adjust my expectations. I am grateful for the advancements in science that brought this medication to all of us, for the relief of my symptoms, for great echo results, for the energy that I do have and for life in general...I am so very blessed. Hope this helps...we all respond differently to meds and treatments. I was so scared to take Camzyos but I would certainly do it all over again...Best wishes to you!

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Replies to "Good morning...started taking 5 mg Camzyos in the mornings in Oct 2025. Felt great the first..."

@christine270 thank you for sharing your experiences.