Anyone experience urethral stricture after prostatectomy?

Posted by risa6069 @risa6069, Jan 9 12:31pm

Got a urethral stricture 6 weeks post op near the end of the penis (at the Fossa Navicularis) which I think is due to the catheter insertion or use. Causes slow urine flow. Anyone else experience this or can share how it was treated? So far just had dilation but recurred.

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Radiation induced stricture here near the bladder neck. Took over 3 minutes to urinate. Surgery to repair is dicey. I’ve had a balloon procedure using Optilume drug-coated balloon which allegedly resists reoccurrence better than a non-medicated procedure.
Been 4 years, still good.

FYI: I have a theory about why the urethra might be staying dilated. I wear an incontinence clamp. That means there is fluid trapped in the urethra all day which acts as constant dilation, like water in a balloon.

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Same here. RP in 2015. Stricture in 2022&23 which was dilated and came back but, never any leakage.
Stricture surgery in May 2024 and 100% incontinent since then. Caveat : Surgeon cut out the stricture, took a piece of my cheek inside mouth and placed fish scales to repair cheek (buccal mucosa graft (BMG)) and placed cheek tissue on urethra to repair stricture cut-out.
Two years later and still have bump inside mouth where the graft was (keep biting it), stricture came back and as an added bonus 100% incontinent. Now looking at AUS.

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Profile picture for jimchs @jimchs

Same here. RP in 2015. Stricture in 2022&23 which was dilated and came back but, never any leakage.
Stricture surgery in May 2024 and 100% incontinent since then. Caveat : Surgeon cut out the stricture, took a piece of my cheek inside mouth and placed fish scales to repair cheek (buccal mucosa graft (BMG)) and placed cheek tissue on urethra to repair stricture cut-out.
Two years later and still have bump inside mouth where the graft was (keep biting it), stricture came back and as an added bonus 100% incontinent. Now looking at AUS.

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@jimchs I’ve read - and have been told by my urologist - that the true corrective surgery for this is not an easy one.
It involves a very prolonged catheterization - 6 months or more - and the surgery itself is complicated; even he did not do it, and he’s the head of urinary surgical oncology at NYU.
The buccal mucosa graft is newer than the medieval one that works, but who really wants it? Tough decision…
Phil

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Profile picture for jimchs @jimchs

Same here. RP in 2015. Stricture in 2022&23 which was dilated and came back but, never any leakage.
Stricture surgery in May 2024 and 100% incontinent since then. Caveat : Surgeon cut out the stricture, took a piece of my cheek inside mouth and placed fish scales to repair cheek (buccal mucosa graft (BMG)) and placed cheek tissue on urethra to repair stricture cut-out.
Two years later and still have bump inside mouth where the graft was (keep biting it), stricture came back and as an added bonus 100% incontinent. Now looking at AUS.

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@jimchs Sorry to hear your stricture was not an easy fix, nor was mine. I punted on it the stricture surgery. My surgeon said installing an AUS after the stricture I had was a bit dicey because if the urethra ever needed further work done, the AUS would have to be removed then put back in. There may be different ways to proceed depending on the integrity of the urethra after surgery. I’ve been dilated with an “Optilume” balloon and wear an incontinence clamp instead with no compromises to QOL

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