Upcoming Radiation: Any advice about process, prep, time commitment?
I’m looking at an upcoming radiation treatment. Hopefully it will be the proton beam type radiation, which I’ve heard is less invasive with fewer side effects. I’m 67, fairly good health, and my cancer is small and in early stages. Any advice for what I’m heading into? The process, prep, time commitment, etc? Success rates? Probable side effects? Limitations or restrictions during and after? Thank you.
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@rlpostrp He was paralyzed due to metastasis to the spine, not a direct result of treatment. Could have been the same with Proton. Had Chemo also.
@bob1955 Bob. I will be starting the exact
Same treatment (same machine) after getting the Barrigel and fiduciary.
My dr didn’t think I needed them but I requested them.
I just felt more more
comfortable with the 28 vs the 5. It is 22 miles away to distance not an issue.
I have 13 of 17 samples with 11 3+3, 1 3+4, and 1 3+5 (<5% of the 5). I thought the extra margins may help get anything near the edge. Very small 22 mL prostate.
Biggest concern is about rectal or urinary issues. Short and long term.
Any special diet?
Optimal time of day for treatment?
Any other tips or observations?
I underwent six weeks of daily radiation last July through the end of August, 2025 and my wife says, ever since, I have had this certain glow…
During the process, I had diarrhea the likes of which I hadn’t seen since I was a Peace Corps volunteer in Africa some forty years ago but it was manageable without medication.
I’m a cyclist, at 68, the most senior member of my team, and I had scheduled a century race - 100 miles - two weeks post radiation so I continued to train during the radiation period but it wasn’t pretty. I was fatigued and I planned a training route where there were evenly spaced public toilets. I was in the middle of one such ride, moving at about ten mph and feeling sorry for myself when a fellow cyclist, a man my age, passed me after politely calling out “on your left”. I let him pass but my competitive spirit engaged and I chased him down and we began talking. He, too, had undergone radiation therapy a decade ago and he assured me that this feeling of malaise was only temporary and I needed to continue my training even when my body wasn’t having it. That was the best advice I’ve received on this journey.
And, yes, I ran the race after getting permission from my oncologist. The diarrhea stopped a week post treatment and I was still careful to keep hydrated. Two of my teammates chaperoned me during the race, ready to flag down an official in the event that I suffered medical distress but, of course, I didn’t.
I haven’t experienced any of the physical symptoms about which others have complained - no hot flashes or urinary incontinence but I do have a certain urgency - when I have to go, I HAVE to go.
I have been training with my team for the past fifteen weekends in preparation for the season and will be riding the Horribly Hilly Hundreds endurance event on Saturday and I will be slower than last year but I fully intend to finish.
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1 Reaction@jaygk Time of day: I'm a morning person, and I find it easier to follow the prep if its in the morning. Your mileage may vary.
I had a couple of days of rectal bleeding (considerable) that then went away. Urinary system slowed way down during tx and has returned to baseline. I've been rather fatigued as of late but I'm on ADT with the radiation. Good luck on your treatment. Interesting, your comment on margins.
@madisonman0326 thanks much.
Are there meds that help preemptively or during that help with the diarrhea or urgent urination?
Are you on. ADT?
@jaygk Yes, I am on ADT.
I had to modify my high fiber diet to a lower fiber one which wasn’t easy since I tend to gain weight easily. I didn’t medicate.
The urgency is frequent but I am suddenly aware of the location of restrooms whenever I am away from home.
@xahnegrey40
Does anyone do MRI Guided Therapy for Salvage Radiation of the Prostate Bed?