Severe Sensorimotor Polyneuropathy, Muscle Wasting, Numbness
Hi Im 49 years old and was diagnosed with Neuropathy and then later changed to severe sensorimotor neuropathy. Nothing was really explained to me or how bad it could get. All Ive been offered is duloxetine or gabapentin despite mentioning I dont really have pain but uncomfortable feelings that last all day. Ive lost 100 pounds which includes muscle wastage and barely have bowel movements which leads to constipation. My left foot feels dead, stiff (cant move toes), numb and the ankle feels loose like its going to collapse. AFO doesnt help the ankle still feels like rubber. My right foot the toes feel like gely, and the bottoms feel like sponge or walking on bone. Both feet deformed to high arches and hammertoes. The toes are pretty much glued together. I could be walking on a broken foot and not know it. Its getting harder to walk and all the neurologist told me was dont worry about it and exercise. Ive tried to exercise but it gets harder to walk every day. I cant walk without shoes now as my arches are stiff and do not touch the floor when standing - they dont respond as they should. My hands are purpleish red and getting stiff and my bicep area is sore. I don’t see the point of going to the doctor as I keep getting worse and their response is always the same. A gastroenterologist told me recently its depression….no @&$&@ Im barely functioning lol!!
Im not really sure what the point of this post is as there doesnt seem to be anything for help. I used to have hopes for WinSanTor but I dont know. Is there anyone here with symptoms this severe? Ive mostly run into people who are in pain or numb. Not sure if a post like this is allowed even but I guess its a vent. This is mental and physical suffering everyday and it feels like no one understands or even cares. I cant work so Im most likely going to be homeless soon which is a death sentence in this condition. Ive been forced to relocate to an area where public transport is horrible but if I didnt i would have been homeless allready or sooner. I live in Canada so I have allready brought up medical euthanasia with my doctor but my case may not be severe enough to be approved - its a long process. Well hope your day is better than mine. I apologize for the negative post but I really do not know what to do. I cant pretend a smile and pretend everything is okay anymore. Neuropathy has destroyed me and at 49 I do not know how it can be possible to exist not live but exist with this. Thank you for reading all this if you did and apologize for being a bummer.
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@annasonery I’m 86 &’have had Neuropathy since i was 70. Spending. Quality time @ the Gym has helped balance & muscle loss.
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