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Tymlos Titration Scedule?

Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (20)

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Profile picture for jbcat26 @jbcat26

I started Tymlos a couple of months ago. Day 1 was 20, day 2...40, day 3...60 and day 4... 80. The morning following the 80, I had a severe headache. I continued on that dose for about a week suffering headaches and light-headedness each day. I contacted my doctor and he reduced me to 20 each day for a week. I did okay. He then increased me to 40...every other day. I've tolerated that pretty well with only mild wooziness at times. Did that dose for 2 weeks. He now wants me to do 60 everyday. I didn't make that change and have actually skipped some doses as I was having company for a few days and didn't want side effects to ruin that. The last few days I have had pretty bad lightheadedness throughout a good part of the day with no Tymlos and now wondering if I'm having withdrawals!!...and now anxious I have screwed up!!! I take mine at night. I also would like to know how not getting the full dose impacts my whole treatment plan.

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Replies to "I started Tymlos a couple of months ago. Day 1 was 20, day 2...40, day 3...60..."

@jbcat26 I’m sorry all that is happening. That sounds rough!

I’m no doctor, so these are just some ideas. Lightheadedness can be a sign of low or high blood pressure. So I recommend if you feel that way to check your blood pressure. If it is low, I recommend hydrating well, maybe even drink something with electrolytes in it…pedialyte or Gatorade. My favorite is Liquid IV powder mixed with water. If your BP is high, eating a banana (potassium brings BP down) can help.

You ramped up quickly on Tymlos. My very limited suggestion would be hydration, hydration, hydration. You might feel better. Headaches are often caused by dehydration.

I took a little longer to ramp up (10 days). Let me know if you want me to send my schedule. I have had some mild side effects but am now at 80mcg with no side effects.