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Profile picture for Turkey, Volunteer Mentor @tomrennie

@tommyandsandy02 Hi and welcome to Mayo Connect. Wow, that's a lot to digest and deal with. I hope you folks got some sleep last night? I don't have a Hepatocellular Carcinoma, but I do have pancreatic cancer that has spread to my liver. My liver has more problems than anywhere else that my cancer has spread. I see a Hepatologist regularly. We met two weeks ago. I have learned a lot from her. Here are my suggestions. Go to the Oncology appointment. See what he has to say. Find out what his treatment options are. Then, make an informed decision on what you folks want to choose next. It could be get a 2nd opinion. I have learned one thing on my cancer journey. To have a quality of life, one must have life. To me, life is worth fighting for. But, you have to learn how to fight. This starts with the Oncology appointment. Also, folks here can help with their experiences. When I was diagnosed in 8/22, my future didn't look promising. I am still here. I can honestly say that I am happy to wake up every day. You are apparently very resourceful by learning all that you have learned already. I salute you for that. Why not keep going until the Oncology appointment, then take things from there? I personally offer you two things:
1. Help you become as educated as possible about Hepatocellular carcinomas prior to your June 11th appointment. To start, here is a link to Mayo's website on this type of cancer. It has a wealth of information. I want to point out the Diagnosis & Treatment tab. There are treatment options: https://www.mayoclinic.org/diseases-conditions/hepatocellular-carcinoma/symptoms-causes/syc-20589101
2. Help you prepare questions for your Oncology appointment. It is critical that you make the most of that appointment.
How is your husband feeling today? How are you feeling?

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Replies to "@tommyandsandy02 Hi and welcome to Mayo Connect. Wow, that's a lot to digest and deal with...."

@tomrennie he has been in alot of pain yesterday and today. The lactulose is not working right now. Sleep is getting more difficult, good nights are few and far between. I will look up the article you suggested I appreciate the resources that this has provided as resources are in short supply. I thank you for your response, I am hoping to figure out how to relieve his immense pain that he is in right now. His pain medicine helps usually but this time he is even moaning in his sleep.