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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (5992)
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@johnbishop

Hi @steve123, Welcome to Mayo Clinic Connect. There are a couple of other discussions that you might find helpful.

- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
- Alternatives for pain management: https://connect.mayoclinic.org/discussion/alternatives-for-pain-management/

@artscaping @avmcbellar @jesfactsmon and other members may also have some suggestions for you.

Have you found any coping mechanisms or treatments that help some?

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Replies to "Hi @steve123, Welcome to Mayo Clinic Connect. There are a couple of other discussions that you..."
avmcbellar | @avmcbellar | Dec 7, 2020

Hi @steve123 I would also like to welcome you to the Mayo Clinic group chat. Here you will find answers or recommendations through the experiences of other members. I am sorry to hear of your bilateral neuropathy. I had a brain aneurysm (AVM) in my cerebellum. I had several surgical repairs but the last one left me with neuropathy unilaterally from head to toe. I have been learning what works for me by trial and error. I will be happy to answer any questions you may have. I do not take any medications for my condition. Best wishes. Toni

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Chris Trout, Volunteer Mentor | @artscaping | Dec 7, 2020

Good evening @steve123. May I add my genuine welcome to Connect. As @johnbishoop may have mentioned, our group of mentors has no official medical training or certification. We can neither diagnose nor prescribe. What we can do is assist you with your search by introducing you to other folks who have been there.

John has given you some links to current members' journeys. As soon as I get just a little more information about where you have been and what has worked for you. Do you have tingling and then needling sensations in your arms and fingers? How about your legs and feet? When did the neuropathy begin?

How do you feel when you wake up in the morning? What is a typical day for you......medications, exercise, activities? What would you like to be doing that you can't do because of neuropathy? Thanks.......

May you be free of suffering and the causes of suffering.
Chris

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