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Post viral syndrome peripheral nerve hyperexcitability

Neuropathy | Last Active: 22 hours ago | Replies (76)

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@josh701 Would love to hear how this has evolved! I would also like to share my journey. It’s been a wild one. Long story short, I went on vacation for a week and my symptoms disappeared. When I came back, they returned. My acupuncturist suggested that I might be experiencing something environmental. I laughed her off at first but then said why not look into it. We discovered TONS of mold in our house, mostly in our HVAC system. I didn’t even know that mold was a thing. I have learned so much since then (this all happened back in January.) Turns out mold can cause many strange symptoms, including BFS. This explained my eczema too. We had to move out of our house and we are temporarily living in an RV until we figure everything out. I’ve been in the RV for 3 months now and I’m slowly getting better. The pain and BFS have been slowly dissipating, it’s probably at only 15% of what it was before overall, but I’ve been have “good” days where all of the symptoms disappear. Also didn’t realize that it can take a while for your body to process mycotoxins, I guess that’s why the symptoms are still lingering but going away gradually. I took a mycotoxin test and tested positive for ochratoxin, trichothecene, and gliotoxin which are produced by specific types of mold.

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Replies to "@josh701 Would love to hear how this has evolved! I would also like to share my..."

@rubyblu89
Glad you were able to identify a trigger!! Still widespread fasiculations but more focal to my right calf but I get them throughout my body. My wrist discomfort has resolved and has been.subsituted with calf aches. Seems like I get migratory aches. I had a period of time my right glute bugged me for about 3 months then my quad then my wrist hand now my calf. It is reassuring those areas improved. Functionally still the same. Just passed the 15 month mark of fasiculations.