My husband is 68. He was healthy and his blood counts were great. Last summer he developed a back rash that just wouldnt go away. We treated it with benedryl thinking it was poison oak but it wouldn't go away. He had a scheduled appointment with our primary care doctor and he put him on short course of steroids, the rash didn't go away but would.come and go. He went back for his 6 month appointment in May and his liver enzymes were suddenly high his wbc was high, his neutrophils were high, his red blood cells were low, he had lost 10 pounds and he had a severe back pain. He was scheduled for a followup the next week but the day of his appointment he Bagan getting nauseous, had a hot throat and pain became severe so we went to er thinking it was possible gallbladder. They found his luver had defects and possible cancer on ct scan. They admitted him and did an mri and found hepatocellular carcinoma and classed it as c. The right lobe of his liver is almost total mass. It has 13.2×12.3 mass, left libe has a medium size mass, several small masses and tumors had infiltrated his hepatic ports either totally blocking them or partially blocking. Thankfully so far his bile duct was not invovolved and dilation, henis is in alot of pain, continues to lose weight , and has started to accumulate ammonia. When we were released from the hospital may 16th we were given a follow up appointment with our primary care and a consultation with the oncologist for June 11th. Keep on mind this means that he is not an established patient with oncologist yet but had active referral to the office. Oncologist met him at the hospital told my husband there was no surgical option that it is in fact terminal. Oncologist wanted biopsy but it was not scheduled by discharging hospitalist, I had to get it scheduled by going through our primary care to get in touch with oncologist ,because oncologist was not listed in my husbands healthcare provider list yet, to finally put order in so he finally got biopsy done June 2nd, it is primary liver cancer. We already knew it was hepatocellular carcinoma class 3 by MRI and tumor marker being close to 13,000. I was given no referral for nutritionist so I had to research thoroughly what was best for him to eat and how often. About 4 days after discharge from hospital he was in severe pain so much he needed my help rolling over and neither of us could sleep, so i called our primary care doctor and he prescribed pain pills. When he started getting slow reaction time and slightly lethargic, I researched why so I called primary care doctor to call in the lactulose he needed. I think he has decided that he wants to forgo the treatment options that will (or could be) offered to him he want to maintain quality of life rather than possible longer quantity with possibility of making him sicker an the real possibility of it shortening his life. We are both on social security, I am disabled with very real at times serious medical problems but we only have each other. We don't even have life insurance and we are barely social security check to social security check making it. We have no savings so it feels like the world is collapsing around. People we thought were friends even family we thought would be there for us wont even give 5$ on our go fund me. I actually got an ugly text from his ex wife that I should take out the part of the go fund me about his cremation cost because some people don't want to be reading that because some people want to give him a fighting chance that including that line was disrespectful. She is a nurse, she knows this cancer is terminal at this stage whether he takes treatments or not. She said she would make sure nobody she knows would support a go fund me if it included cost of his cremation, but she would be happy to help pay for the treatments. He divorced this woman in 1999. I have been with him since may 2000 married to him since August of 2002. They don't even speak but people in their old circle still keep in touch with both him and her and filled her in. All of it is emotionally draining, physically draining, financially demanding, and the absolute hardest thing to have to go through alone, especially when getting attacked for his choices but since I want his environment is kept calm I take those hits too. I live him, I would do anything for him, but cancer is horrible. I wish I could take it away from him magically, I would take this on for him if I could so I do everything I can to keep him as long as I have him.