@sckf I was on HU for 9 months. Suffered with a variety of symptoms. Glossitis, bleeding gums, tingling feet, brain fog, repeated UTIs, bone pain and extreme fatigue. Oncologist/hematologist would never acknowledge that this was all from HU.
Self referred to NPM specialist at Cleveland Clinic. He listened.
Put me on HU holiday. It’s been 6 weeks off HU My symptoms have disappeared except for bone pain. I’m 90% better.
Will start interferon once my platelets rise steadily above 600.
Seek out an MPN specialist if you have not. They are much more updated on better treatment!