← Return to Living with Parkinson's Disease - Meet others & come say hi

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @meg17, and welcome to the PD support group on Mayo Clinic Connect. I can certainly understand your difficulty in not wanting to "say the full word." It does take time to get used to a new diagnosis, especially one like PD.

Share, as you are comfortable, a little about your history with PD. For example, how long ago were you diagnosed? What treatments, such as medications, physical or speech therapy, have you tried?

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Replies to "Hello @meg17, and welcome to the PD support group on Mayo Clinic Connect. I can certainly..."

Madopar 100/25 three times a day + 1 slow release at night..can't say they do much for me 5/6 years since symptoms and formal diagnosis approx 3 years..physio not much results.no speech therapy and just regular neurology appointments..really horrid having it at all but the mouth and tongue is so hard to hide and cope with..