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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6021)
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@irishpat70

I have many symptoms and health problems. My care seems scattered with many doctors but not brought together to find or help problems. All I know is my legs and feet are becoming worse and feel I'm losing my ability to walk. Losing my balance also. My feet are so painful and swollen I cannot wear shoes. I wear compression stockings for leg swelling but my feet and ankles still swell a great deal. I have hot red feet and legs at night. I have trouble sleeping and am not Diabetic. Don't know what is causing this. I also have chronic back problems and carpel tunnel in both hands. I am at a loss as to what to do! I take Pregablin to no avail and have Opiods for my back pain. I also take a nsaid. I'm having increasing problems and am worried I will end up in a wheelchair. My feet are also extremely sensitive to cold. I can't win...what is wrong with me? Can I be helped?

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Replies to "I have many symptoms and health problems. My care seems scattered with many doctors but not..."
John, Volunteer Mentor | @johnbishop | Nov 20, 2020

Hello @irishpat70, Welcome to Mayo Clinic Connect. I also wear compression socks (20-30 mmhg) to help with swelling in my legs from lymphedema. Here are other discussions on Connect that you may find helpful.

- lymphedema: https://connect.mayoclinic.org/discussion/lymphedema-2f0573/
- Prognosis in treating carpal tunnel left untreated for 50 years: https://connect.mayoclinic.org/discussion/prognosis-in-treating-carpal-tunnel-left-untreated-for-50-years/
- Please help with sleep problems: https://connect.mayoclinic.org/discussion/0616/

Have you had any tests to find out the cause of the fluid buildup in your legs and feet?

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Hank | @jesfactsmon | Nov 20, 2020

@irishpat70
Hi, I am wondering, since you placed your post under the neuropathy group, whether you have been diagnosed with peripheral neuropathy (PN)? If not, are you intending to be tested for it?

As to what can cause PN other than diabetes, I have heard a myriad of different causes from a number of different people in this forum. My wife's is from chemotherapy (a fairly common cause), but quite a few people say theirs was from different surgical procedures. Some have gotten it simply from an injection. A vitamin b12 deficiency caused another person's case. And there are other causes as well. Just FYI. Best, Hank

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